Theme
Collaborating to make traumatic stress research data “FAIR”
Theme leader: Nancy Kassam-Adams
The FAIR Guiding Principles for scientific data stewardship state that data should be Findable, Accessible, Inter-operable, and Re-usable (FAIR). These principles are part of the growing movement toward more open and transparent science. Making traumatic stress research data more FAIR can promote better science, enhance understanding of trauma impact and recovery, and ultimately benefit trauma-exposed individuals and communities around the world. But to date most traumatic stress studies have not been designed with data preservation, sharing, or re-use in mind. See also Kassam-Adams & Olff (2020). Projects in this theme will create resources that can facilitate FAIR data across the field of traumatic stress studies.
We need to hear from you!
SURVEY: If you are a traumatic stress researcher at any career stage (including trainees) we invite you to share your opinions and experiences by participating in this survey: International Survey on Data Sharing and Re-use in Traumatic Stress Research
PROJECTS
Projects in the FAIR Data theme span the research data lifecycle. Our projects are making it easier to FIND and RE-USE traumatic stress data resources, creating ACCESSIBLE data archives focused on traumatic stress research, and building tools to help traumatic stress researchers implement FAIR data practices.
BUILDING FAIR DATA TOOLS & INFRASTRUCTURE
FINDABLE TRAUMA DATA:
Can we make traumatic stress data more findable? We are starting by building a searchable index…
(Project leaders: Yaara Sadeh and Anna Denejkina)
A listing of available FAIR traumatic stress data sets can be found here.
TOOLKIT FOR FAIR TRAUMATIC STRESS DATA:
Creating a toolkit of resources to help traumatic stress researchers use FAIR data practices ....
(Project leader: Talya Greene)
REUSABLE TRAUMA DATA:
“Sharing data is not enough - data need to tell their stories.” This project focuses on metadata and harmonization ....
(Project leaders: Nancy Kassam-Adams and Maya O’Neil)
References
Read more about FAIR data and traumatic stress research:
Kassam-Adams, N & Olff M (2020). Embracing data preservation, sharing, and re-use in traumatic stress research. European Journal of Psychotraumatology, 11 (1).
https://doi.org/10.1080/20008198.2020.1739885
INTEGRATIVE DATA PROJECTS
TRAUMATIC GRIEF DATA:
Building an archive for data on adult and childhood grief after traumatic and nontraumatic loss ....
(Project leaders: Lonneke Lenferink and Paul Boelen)
CHILD TRAUMA DATA:
Sustaining and expanding the Child Trauma Data Archives of prospective and intervention studies....
(Project leader: Nancy Kassam-Adams)
ADULT TRAUMA TREATMENT:
Bringing together data from intervention studies to understand and improve trauma treatment …
(Project leader: Simonne Wright)
VETERANS
Creating an international veteran dataset to answer key questions in military mental health…
(Project leader: Andrea Phelps)